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Rett Syndrome

Wednesday, March 7, 2012

Spencer Loomis Students Raise Money for Rett Syndrome

The students sold denim ribbons and raised more than $1,000.

When Amelia "Emmy" Foster arrived at Spencer Loomis Elementary School on Monday, it didn't take long for her to steal the hearts of everyone around her.  As soon as her mom, Colleen, let Emmy out of her stroller, the 3-year-old rushed toward the dozens of students gathered in the multipurpose room. But as eager as Emmy was to see them, the students were even happier to meet Emmy. The Spencer Loomis students recently completed a fundraiser, Jeans for Genes, with the local Two Hearts Rock nonprofit group. The money raised will help support Rett syndrome research. Emmy suffers from Rett syndrome, which is a rare genetic disorder that robs young children diagnosed with it of their verbal and motor skills. Spencer Loomis students made denim …

Friday, February 10, 2012

Nonprofit, Student Council Team Up to Combat Rare Genetic Disease

Second Dollar Denim Days will culminate Feb. 29; members of the community are encouraged to get involved to raise funds for research and awareness of Rett syndrome.

Lake Zurich-based nonprofit Two Hearts Rock is working in concert with the Spencer Loomis Elementary School Student Council to bring awareness to Rett syndrome, a rare and debilitating genetic disease for which there is no cure. All proceeds from the Dollar Denim Days fundraiser will go toward advancing research of the disease, which robs young children diagnosed with it of both their verbal and motor skills. The impetus for the fundraiser comes from the plight of 3-year-old Amelia "Emmy" Foster and her family. Emmy was diagnosed with Rett syndrome in the summer of 2011. Emmy’s mother Colleen is a former teacher at Spencer Loomis, and school staff made Two Hearts Rock co-founders Kerry Hughes and Lori Butler aware of Emmy’s diagnosis and …

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