Friday, April 19, 2013
Lake Zurich's Two Hearts to host Trapper Schoepp & The Shades.
Lake Zurich's Two Hearts Rock bands together for rare disease research with a show scheduled for May 25 at Reggie’s Rock Club, 2109 S. State Street, Chicago. Trapper Schoepp & The Shades have toured with Jakob Dylan and The Wallflowers. You will really enjoy this HIGH ENERGY show. Tickets are on sale now for $15. For more information visit: Two Hearts Rock.
Thursday, February 28, 2013
Mayor Suzanne Branding will recognize Spencer Loomis Student Council who implemented a rare disease awareness program at their school.
Thursday, February 28
Suzanne Branding, Mayor of Lake Zurich, proclaims that the Village of Lake Zurich, its residents and its businesses recognize Thursday, Feb. 28, 2013 as Rare Disease Day. Lake Zurich joins the global celebration being marked by various advocacy events in Washington, D.C. and around the world. On Monday, March 4, at the Village Board Meeting, Mayor Suzanne Branding will give recognition to the Spencer Loomis Student Council who contributed and implemented the Two Hearts Rock campaign at their school. “Dollar Denim Days” is a week-long, school-based initiative facilitated by Two Hearts Rock™. The campaign raises awareness for rare diseases in the weeks leading up to Rare Disease Day, Thursday, Feb. 28, 2013. This initiative also unifies…
Tuesday, February 5, 2013
Dollar Denim Days raises hope, funds for Global Genes.
- VOLUNTEERS IN THE NEWS
Tuesday, February 5
Spencer Loomis Elementary students are participating in “Dollar Denim Days,” a week-long, school-based initiative orchestrated by Two Hearts Rock to raise awareness for rare disease. The campaign unifies the student body under a symbol of hope - the Blue Denim Genes Ribbon. As a statement of solidarity, students and faculty members wear jeans to school. Wearing denim in harmony brings awareness to a critical medical cause. Rare disease affects 1 in 10 Americans, and 350 million people worldwide. This week, students donate $1 each day they don their denim
Proceeds support the Alternating Hemiplegia of Childhood Foundation and Global Genes/Two Hearts Rock Alternating Hemiplegia of Childhood (AHC) is a rare neurological disorder in which…
Monday, January 28, 2013
Event includes two bands, film screening.
Two Hearts Rock, a Lake Zurich area non-profit, will host “Rock The Reel,” a unique medical Benefit and film screening designed to raise awareness for rare disease, at 6 p.m., Saturday, Feb. 2, at McGonigals Pub in Barrington. The event features live music by Tanglewood Tales and Between the Lines. Tracy VanHoutan, founder of Noah’s Hope, will be the master of ceremonies at the event which will feature a free screening of The Ewing Marion Kauffman Foundation Film, "Here.Us.Now. - A Family's Fight to Bring Medical Innovation Home.” Motor Werks of Barrington and MJ Miller & Company are leading sponsors of this event along with personal donors from the Barrington community who support Hope 4 Bridget on a regular basis. Proceeds will …
Tuesday, January 15, 2013
Neighbors join forces in creating unique non-profit that unites people through music.
Two Lake Zurich moms have combined their shared love of music with their desire to help children fighting rare diseases. Lori Butler and Kerry Hughes of Two Hearts Rock started a non-profit that raises awareness of rare diseases, supports the families affected by rare disease and raises funds for research. “Two Hearts Rock is a platform for raising hope and awareness for rare disease using live music,” Butler said. “The name comes from a Bruce Springsteen song; Two hearts are better than one and two hearts will get the job done,’ Hughes said. It all started with Facebook and Bridget. Butler and Hughes are neighbors who became Facebook friends and realized their shared love of music, particularly Bruce Springsteen. “Lori and I love …
Wednesday, March 7, 2012
The students sold denim ribbons and raised more than $1,000.
When Amelia "Emmy" Foster arrived at Spencer Loomis Elementary School on Monday, it didn't take long for her to steal the hearts of everyone around her. As soon as her mom, Colleen, let Emmy out of her stroller, the 3-year-old rushed toward the dozens of students gathered in the multipurpose room. But as eager as Emmy was to see them, the students were even happier to meet Emmy. The Spencer Loomis students recently completed a fundraiser, Jeans for Genes, with the local Two Hearts Rock nonprofit group. The money raised will help support Rett syndrome research. Emmy suffers from Rett syndrome, which is a rare genetic disorder that robs young children diagnosed with it of their verbal and motor skills. Spencer Loomis students made denim …
Friday, February 10, 2012
Second Dollar Denim Days will culminate Feb. 29; members of the community are encouraged to get involved to raise funds for research and awareness of Rett syndrome.
Lake Zurich-based nonprofit Two Hearts Rock is working in concert with the Spencer Loomis Elementary School Student Council to bring awareness to Rett syndrome, a rare and debilitating genetic disease for which there is no cure. All proceeds from the Dollar Denim Days fundraiser will go toward advancing research of the disease, which robs young children diagnosed with it of both their verbal and motor skills. The impetus for the fundraiser comes from the plight of 3-year-old Amelia "Emmy" Foster and her family. Emmy was diagnosed with Rett syndrome in the summer of 2011. Emmy’s mother Colleen is a former teacher at Spencer Loomis, and school staff made Two Hearts Rock co-founders Kerry Hughes and Lori Butler aware of Emmy’s diagnosis and …