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Rare Disease Day

Thursday, February 28, 2013

Mayor of Lake Zurich Proclaims Feb. 28 as Rare Disease Day

Mayor Suzanne Branding will recognize Spencer Loomis Student Council who implemented a rare disease awareness program at their school.

  Suzanne Branding, Mayor of Lake Zurich, proclaims that the Village of Lake Zurich, its residents and its businesses recognize Thursday, Feb. 28, 2013 as Rare Disease Day.  Lake Zurich joins the global celebration being marked by various advocacy events in Washington, D.C. and around the world.  On Monday, March 4, at the Village Board Meeting, Mayor Suzanne Branding will give recognition to the Spencer Loomis Student Council who contributed and implemented the Two Hearts Rock campaign at their school.  “Dollar Denim Days” is a week-long, school-based initiative facilitated by Two Hearts Rock™. The campaign raises awareness for rare diseases in the weeks leading up to Rare Disease Day, Thursday, Feb. 28, 2013. This initiative also unifies…

DaddyO

9:27 am on Friday, March 1, 2013

Good idea Branding's husband.   more ›

Tuesday, January 15, 2013

Lake Zurich’s Two Hearts Rock Brings Hope in Fight Against Rare Disease

Neighbors join forces in creating unique non-profit that unites people through music.

  Two Lake Zurich moms have combined their shared love of music with their desire to help children fighting rare diseases.  Lori Butler and Kerry Hughes of Two Hearts Rock started a non-profit that raises awareness of rare diseases, supports the families affected by rare disease and raises funds for research. “Two Hearts Rock is a platform for raising hope and awareness for rare disease using live music,” Butler said.  “The name comes from a Bruce Springsteen song; Two hearts are better than one and two hearts will get the job done,’ Hughes said.   It all started with Facebook and Bridget. Butler and Hughes are neighbors who became Facebook friends and realized their shared love of music, particularly Bruce Springsteen.  “Lori and I love …

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