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Global Genes

Tuesday, February 5, 2013

Spencer Loomis Kids Wear Denim for Rare Disease Awareness

Dollar Denim Days raises hope, funds for Global Genes.

    Spencer Loomis Elementary students are participating in “Dollar Denim Days,” a week-long, school-based initiative orchestrated by Two Hearts Rock to raise awareness for rare disease. The campaign unifies the student body under a symbol of hope - the Blue Denim Genes Ribbon.  As a statement of solidarity, students and faculty members wear jeans to school. Wearing denim in harmony brings awareness to a critical medical cause. Rare disease affects 1 in 10 Americans, and 350 million people worldwide. This week, students donate $1 each day they don their denim
Proceeds support the Alternating Hemiplegia of Childhood Foundation and Global Genes/Two Hearts Rock Alternating Hemiplegia of Childhood (AHC) is a rare neurological disorder in which…

Monday, January 28, 2013

Rock the Reel at McGonigal’s to Benefit Bridget, Rare Disease Campaign

Event includes two bands, film screening.

  Two Hearts Rock, a Lake Zurich area non-profit, will host  “Rock The Reel,” a unique medical Benefit and film screening designed to raise awareness for rare disease, at 6 p.m., Saturday, Feb. 2, at McGonigals Pub in Barrington. The event features live music by Tanglewood Tales and Between the Lines.  Tracy VanHoutan, founder of Noah’s Hope, will be the master of ceremonies at the event which will feature a free screening of The Ewing Marion Kauffman Foundation Film, "Here.Us.Now. - A Family's Fight to Bring Medical Innovation Home.” Motor Werks of Barrington and MJ Miller & Company are leading sponsors of this event along with personal donors from the Barrington community who support Hope 4 Bridget on a regular basis. Proceeds will …

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