Mayor of Lake Zurich Proclaims Feb. 28 as Rare Disease Day

Mayor Suzanne Branding will recognize Spencer Loomis Student Council who implemented a rare disease awareness program at their school.

  Suzanne Branding, Mayor of Lake Zurich, proclaims that the Village of Lake Zurich, its residents and its businesses recognize Thursday, Feb. 28, 2013 as Rare Disease Day.  Lake Zurich joins the global celebration being marked by various advocacy events in Washington, D.C. and around the world.  On Monday, March 4, at the Village Board Meeting, Mayor Suzanne Branding will give recognition to the Spencer Loomis Student Council who contributed and implemented the Two Hearts Rock campaign at their school.  “Dollar Denim Days” is a week-long, school-based initiative facilitated by Two Hearts Rock™. The campaign raises awareness for rare diseases in the weeks leading up to Rare Disease Day, Thursday, Feb. 28, 2013. This initiative also unifies…

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DaddyO

9:27 am on Friday, March 1, 2013

Good idea Branding's husband.   more ›

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Walk-athon Raises Awareness and Funds for Rare Disorder

The sixth annual AHCF Chicago Walk was held at Paulus Park on Sept. 18.

On Sept. 18, family and friends turned out for the sixth annual AHCF Chicago Walk in Paulus Park. Alternating hemiplegia of childhood is a rare neurological disorder. There are just four or five children in the area known to have it and only about 600 who have been diagnosed with it worldwide.   The walk-athon in Lake Zurich is one of four across the country that is coordinated by families of children with AHC. The other locations include Raleigh, N.C. (held Sept. 10), East Lansing, Mich., (Sept. 23) and Neola, Iowa (Oct.1). The Chicago area walk was started by the godparents of 9-year-old Emma Platt of Mount Prospect, who has AHC. Gene and Kelly Andrasco and their 10-year-old daughter Kiley, who also has AHC, are organizers of the event…

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