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Two Hearts Rock "Drums Up" Awareness for Rare Disease

Rare Disease Patient Advocates use live music as fuel for creating medical breakthroughs.

 

"It is estimated that 95% of all rare diseases do not have a single FDA approved drug treatment, and there are currently less than 400 treatments approved by the FDA  for the nearly 7000 rare diseases which have been identified. According to estimates from the NIH, it will take 10,000 years at the current rate of FDA drug approvals to find therapies for all people suffering from rare and genetic diseases."

"Music Creates Unity" is the belief of Two Hearts Rock Co-Founders, Kerry Hughes and Lori Butler of Lake Zurich.  That is precisely why these two compassionate women joined forces in 2010.  Inspired by Bridget Kennicott of Barrington, who battles Batten Disease, Two Hearts Rock is commited to supporting Hope 4 Bridget Foundation and the Rare Disease Community as a whole. Two Hearts Rock has become a local fundraising division of RARE Project | Global Genes: a non-profit 501c3 Foundation providing advocacy and hope for the Rare Disease Community.

The mission of Two Hearts Rock™ is to generate funds for the advancement of research for Childhood Rare Disease by using the power of music to fuel medical breakthroughs.

Please visit www.2heartsrock.org to keep the beat with upcoming Events marking World Rare Disease Day on February 28, 2013.

This post is contributed by a community member. The views expressed in this blog are those of the author and do not necessarily reflect those of Patch Media Corporation. Everyone is welcome to submit a post to Patch. If you'd like to post a blog, go here to get started.

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